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Featured Web Links - 2010 March |
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Featured Web Links
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Thursday, 10 June 2010 10:23 |
- Sickle Cell & Young Stroke Survivors (SCYSS) is a charity that supports children and young people affected by Sickle Cell Disease and Stroke. http://www.scyss.org/
- Sickle Cell Mom - at http://sicklecellmom.wordpress.com/ Sickle Cell Mom is a mother parenting someone with Sickle Cell or a mother who has Sickle Cell herself. I’ve long needed a place to journal and express my thoughts and experiences as a Sickle Cell Mom. I plan to keep it real, informative and definitely inspirational
- Recently, Genetic Alliance has gone through a process of redeveloping www.geneticalliance.org in the efforts to make quality content more accessible to everyone. As a part of this process, the links to many of our pages and resources have changed. So please, update your bookmarks and any links to www.geneticalliance.org that may be embedded in your organization's website and together we can make this transition as seamless as possible.
- The Genetic Disease Foundation (GDF) is a 501(c)(3) not-for-profit organization established in 1997 by patients and families affected by genetic disorders. The Foundation's mission is to support research, education and the prevention of genetic diseases.
The GDF supports: education programs to increase awareness about genetic diseases and the need for and availability of genetic testing; research to improve genetic testing and discover ways to treat, cure and ultimately prevent genetic disorders; and genetic counselors and health professionals with experience in medical genetics and counseling.
The Genetic Disease Foundation is affiliated with the Mount Sinai School of Medicine's Department of Genetics and Genomic Sciences, whose faculty lead the country in clinical research to improve prenatal diagnosis, carrier screening, genetic counseling methods, and therapies for genetic diseases.
- In observance of World Rare Disease Day on February 28, 2010, the Genetic Disease Foundation is launching KnowYourGenes.org – a new easy-to-understand resource for people who are planning a family, have a family member or friend with a genetic disease or have a personal interest in undergoing genetic testing.
- "KnowYourGenes.org was created to address the lack of easy-to-understand information out there about genetic testing and the role genes play in your health," said Elisa Ross, President of the Genetic Disease Foundation. "GDF is proud to bring this resource to all those who want to take a preventive and proactive approach to their health and the health of their family."
In addition to providing helpful information on genetic diseases and testing, KnowYourGenes.org also includes a quiz to determine who should undergo genetic testing and where to find the nearest genetic testing location and personal genetic counselor.
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Last Updated on Thursday, 10 June 2010 10:28 |
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