Home Sickle Cell Resource Page World Wide Resources CDC Webinars: Hemoglobinopathies and Public Health
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Sickle Cell Resources - World Wide Resources

The CDC is currently hosting a series of webinars focused on Hemoglobinopathies and Public Health.  We are providing archives of these webinars here, so those who are interested can view them at their convenience.   A schedule of upcoming seminars is included below, along with information on how to join a seminar.  

 

 

Upcoming Seminars

All seminars are held from 2:00pm - 3:00pm ET.

 

 

5/22: The global burden of sickle cell disease

Dr. Fred Piel, University of Oxford

 

6/26: Quality of life measurement for the hemoglobinopathies

Dr. Marsha Treadwell, Children’s Hospital Oakland Research Institute

 

7/24: Topic TBD

Dr. Rakhi Naik, Johns Hopkins Medicine

 

8/28: Pregnancy and thalassemia

Dr. Alexis Thompson, Northwestern University

 

9/25: Sickle cell trait and neonatal hematologic screening

Dr. Zora Rogers, University of Texas Southwestern Medical Center

 

10/23: Transition of care for children and young adults living with sickle cell disease

Dr. Ify Osunkwo, Levine Cancer Institute/Carolinas HealthCare System

 

November and December: --- No Webinar ---

 

 

 

If you have ideas on topics for future webinars, or have any questions or comments about this series please submit them to Shae Pope This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

 

 

 

Joining a seminar

To Join The Webinar

Copy this address and paste it into your web browser: https://www.livemeeting.com/cc/cdc/join

Copy and paste the required meeting ID: 84QK2D and click “join”.

First Time Users: To save time before the meeting, check your system to make sure it is ready to use Microsoft Office Live Meeting.

 

For Audio

Dial 1-877-953-6706 and enter participant code: 9706616

If you are unable to join us on the internet for viewing, you are welcome to call in for audio access only.

Participants outside the United States must be able to access 800 numbers to the US. Otherwise, please RSVP the location and number of participants for alternative international conference line access.

 

For more information on the webinars, please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

 

Previous Seminar Videos and Presentation Files

 

 

2014-04-24: Sickle cell disease in Georgia, from newborn screening to transition

Dr. Peter Lane, Children’s Healthcare of Atlanta


2014-03-27: Global initiatives in sickle cell disease

Dr. Kwaku Ohene-Frempong, Sickle Cell Foundation of Ghana

 

2014-02-27: The discovery and early history of sickle cell disease

Dr. Todd Savitt, Brody School of Medicine at East Carolina University

Streming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDC022714.wmv

PDF of Presentation Handout: Discovery and Early history of Sickle cell disease - Dr. Todd Savitt

 

2014-01-23: An overview of sickle cell disease activities in Angola

Dr. Russell Ware and Dr. Patrick McGann, Cincinnati Children's Hospital Medical Center

 

2013-11-06 - James R. Eckman, MD Sickle Cell Scientific Symposium

View all 10 webinar presentations for this Symposium

PDF of Presentation Handout: Sickle Cell Symposium Celebrating the Lifetime Career of Dr. James R. Eckman

 

2013-11-07 - Dr. Charles Quinn, Cincinnati Children's Hospital Medical Center

Streaming Videomms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDC111313.wmv

PDF of Presentation Handout: Improved Survival of Children and Adolescents with Sickle Cell Disease

 

2013-10-24 - Dr. Winfred Wang, St. Jude Children’s Research Hospital

Streaming Videomms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDC102913.wmv

PDF of Presentation HandoutHydroxyurea: Efficacy and Effectiveness in Children with Sickle Cell Anemia

 

2013-09-26 - Dr. Joylene John-Sowah, National Heart Lung and Blood Institute, NIH

Streaming Video:  mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDC092613.wmv

PDF of Presentation HandoutThe Road To The Evidence Based Management of Sickle Cell Disease: Expert Panel Report

 

2013-08-22 - Dr. Patricia Kavanagh, Boston University School of Medicine/Boston Medical Center

Streaming Videomms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDC082213.wmv

PDF of Presentation HandoutMental Health and Learning Needs in children with Sickle Cell Disease

 

2013-07-25 - Dr. Coretta Jenerette, International Association of Sickle Cell Nurses and Physician Assistants

Streaming Video:  mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDC072513.wmv

PDF of Presentation Handout: Nurses’ Impact on the Stigmatization of Individuals with Sickle Cell: Challenges and Recommendations

 

2013-06-27 - Dr. Christopher Bean, National Center on Birth Defects and Developmental Disabilities, CDC

Streaming Videomms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDC062713.wmv

PDF of Presentation Handout: 2013-06-27_Hemoglobinopathies_Webinar_DrBean_Beta-globin_Haplotypes_Analysis_in_Children_w_SCD

 

2013-05-23 - Dr. Sophie Lanzkron, Sickle Cell Center for Adults at Johns Hopkins Hospitals

Streaming Videomms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCbabyonboard.wmv

PDF of Presentation Handout: Baby on Board: What You Need to Know about Pregnancy in the Hemoglobinopathies

 

2013-04-25 - Dr. Robert Yamashita, California State University San Marcos

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDC042513.wmv

PDF of Presentation Handout2013-04-25_Hemoglobinopathies_Webinar_DrYamashita_Building_behavioral_and_social_databases

 

2013-03-28- Dr. Courtney Thornburg, Duke Pediatric Sickle Cell Clinic

Streaming Videomms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDChydrea313.wmv

PDF of Presentation HandoutStrategies to Improve Implementation of Hydroxyurea

 

2013-02-28- Dr. Carlton Haywood Jr., Johns Hopkins University

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDChaywood.wmv

PDF of Presentation Handout: Disparities in Sickle Cell Disease Care: Disentangling the Roles of Race, Place, and Disease State)

 

2013-01-24- Dr. Thomas Coates, Children’s Hospital of Los Angeles

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCironCoates.wmv

PDF of Presentation Handout: Monitoring and Management of Transfusional Iron Overload

 

2012-10-25- CDC’s Division of Blood Disorders and RuSH Project States

Streaming Video: (coming soon)

PDF of Presentation Handout: Strategies from the Field – Data Collection and Harmonization

 

2012-09-27- Dr. James Moses, Boston Medical Center

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCMoses.wmv

PDF of Presentation Handout: Improving Quality of Care for Sickle Cell Pediatrics in the Emergency Department

 

2012-08-23 - Dr. Shawn Bediako, University of Maryland, Baltimore County

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCBediako.wmv

PDF of Presentation Handout: Translating Research to Policy

 

2012-07-26 - Cancelled


2012-06-28 - Dr. Lanetta Jordan, Memorial Regional Hospital

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCJordan.wmv

PDF of Presentation HandoutSickle Cell Trait – What Every CBO Needs to Know

 

2012-05-24 - Dr. Paula Tanabe, Duke University

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCertreat.wmv

PDF of Presentation HandoutSickle Cell Disease and Emergency Department Use

 

2012-04-26 - Dr. Kathryn Hassell, University of Colorado Denver

Streaming Video: View Recording

PDF of Presentation HandoutSickle Cell – Adult Providers Network

 

2012-03-22 - CDC’s Division of Blood Disorders and RuSH Project States

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCrush.wmv

PDF of Presentation HandoutStrategies from the Field – Community Partnership and Health Education

 

 

Medical Home Model for Sickle Cell Disease

2012-02-23 - Dr. Michael DeBaun, Vanderbilt University

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCHome.wmv

PDF of Presentation HandoutMedical Home Model for Sickle Cell Disease

 

 

Transition of Care for Sickle Cell Disease - Pediatrics to Adult Care

2012-01-26 -Dr. Ify Osunkwo, Children’s Healthcare of Atlanta

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCTransition.wmv

PDF of Presentation HandoutTransition of Care for Sickle Cell Disease - Pediatrics to Adult Care

 

The Use of Hydroxyurea for Sickle Cell Disease

2011-10-27 -Dr. Nancy Green, Columbia University Medical Center

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCHydrea.wmv

PDF of Presentation Handout:  [ coming soon ]

 

New York Blood Center’s ‘Precise Match’ Program

2011-09-22 - Dr. Yelena Ginzburg, New York Blood Center

Streaming Video: [ unavailable ]

PDF of Presentation Handout:  [ unavailable ]

 

Bone Marrow/Stem Cell Transplant Program – Retreat for Families and Patients

2011-08-25 - Dr. Lewis Hsu, Center for Cancer and Blood Disorders

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCHsu.wmv

PDF of Presentation Handout: A New Approach to Sickle Cell Family Education on Bone Marrow Transplantation

 

Transfusion Issues for Sickle Cell Disease and Thalassemia Patients

2011-07-28 - Dr. Rebecca Kruse-Jarres, Tulane University School of Medicine

Streaming Videomms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCKruse.wmv

PDF of Presentation Handout: Transfusion Issues for Sickle Cell Disease and Thalassemia Patients

 

Vitamin Deficiency in Sickle Cell Disease

2011-05-26 - Dr Ify Osunkwo, Children’s Healthcare of Atlanta

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCvitDefSCD.wmv

PDF of Presentation Handout: Vitamin Deficiency in Sickle Cell Disease

 

New Born Screening Engagement with the Community

2011-04-28 -Dr. Allison Streetly, King’s College London

PDF of Presentation Handout: Newborn Screening Engagement with the Community

 

Iron overload in Children with Sickle Cell Disease

2011-03-24 - Dr. Tom Adamkiewicz, Morehouse College School of Medicine

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCIron.wmv

PDF of Presentation Handout: Iron overload in Children with Sickle Cell Disease

 

Sickle Cell Disease and Education

2011-01-27 -Dr. Simon Dyson, De Montfort University

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCDyson.wmv

PDF of Presentation Handout: Sickle Cell Disease and Education

 

 

 

 

James R. Eckman, MD

Sickle Cell Scientific Symposium

Saturday, November 16, 2013

Last Updated on Friday, 18 April 2014 15:10
 
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