The CDC is currently hosting a series of webinars focused on Hemoglobinopathies and Public Health.  We are providing archives of these webinars here, so those who are interested can view them at their convenience.   A schedule of upcoming seminars is included below, along with information on how to join a seminar.  

Upcoming Seminars

All seminars are held from 2:00pm - 3:00pm ET.

Hemoglobinopathies Webinar Schedule 2013

5/23: Baby on Board: What You Need to Know about Pregnancy in the Hemoglobinopathies

Dr. Sophie Lanzkron, Sickle Cell Center for Adults at Johns Hopkins Hospital

6/27: Beta-globin Haplotype Analysis in Children with Sickle Cell Anemia

Dr. Christopher Bean, National Center on Birth Defects and Developmental Disabilities, CDC

7/25: Nurses’ Impact on the Stigmatization of Individuals with Sickle Cell: Challenges and Recommendations

Dr. Coretta Jenerette, International Association of Sickle Cell Nurses and Physician Assistants

8/22: Mental Health and Learning Needs in children with Sickle Cell Disease

Dr. Patricia Kavanagh, Boston University School of Medicine/Boston Medical Center

9/26: NHLBI Sickle Cell Disease Guidelines

Dr. Joylene John-Sowah, National Heart Lung and Blood Institute, NIH 

10/24: Current Data on Efficacy and Effectiveness of Hydroxyurea in Children with Sickle Cell Disease

Dr. Winfred Wang, St. Jude Children’s Research Hospital

Joining a seminar

To Join The Webinar

Copy this address and paste it into your web browser: https://www.livemeeting.com/cc/cdc/join

Copy and paste the required meeting ID: 84QK2D and click “join”.

First Time Users: To save time before the meeting, check your system to make sure it is ready to use Microsoft Office Live Meeting.

For Audio

Dial 1-877-953-6706 and enter participant code: 9706616

If you are unable to join us on the internet for viewing, you are welcome to call in for audio access only.

Participants outside the United States must be able to access 800 numbers to the US. Otherwise, please RSVP the location and number of participants for alternative international conference line access.

For more information on the webinars, please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Previous Seminar Videos and Presentation Files

2013-04-25 - Dr. Robert Yamashita, California State University San Marcos

Streaming Video:  (coming soon)

PDF of Presentation Handout:  (PDF coming soon: Building Behavioral and Social Science Databases for the Hemoglobinopathies: Lessons from the Study of Thalassemia)

2013-03-28- Dr. Courtney Thornburg, Duke Pediatric Sickle Cell Clinic

Streaming Video:  mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDChydrea313.wmv

PDF of Presentation Handout:  Strategies to Improve Implementation of Hydroxyurea

2013-02-28- Dr. Carlton Haywood Jr., Johns Hopkins University

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDChaywood.wmv

PDF of Presentation Handout: Disparities in Sickle Cell Disease Care: Disentangling the Roles of Race, Place, and Disease State)

2013-01-24- Dr. Thomas Coates, Children’s Hospital of Los Angeles

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCironCoates.wmv

PDF of Presentation Handout: Monitoring and Management of Transfusional Iron Overload

2012-10-25- CDC’s Division of Blood Disorders and RuSH Project States

Streaming Video: (coming soon)

PDF of Presentation Handout: Strategies from the Field – Data Collection and Harmonization

2012-09-27- Dr. James Moses, Boston Medical Center

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCMoses.wmv

PDF of Presentation Handout: Improving Quality of Care for Sickle Cell Pediatrics in the Emergency Department

2012-08-23 - Dr. Shawn Bediako, University of Maryland, Baltimore County

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCBediako.wmv

PDF of Presentation Handout: Translating Research to Policy

2012-07-26 - Cancelled

2012-06-28 - Dr. Lanetta Jordan, Memorial Regional Hospital

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCJordan.wmv

PDF of Presentation Handout:  Sickle Cell Trait – What Every CBO Needs to Know

2012-05-24 - Dr. Paula Tanabe, Duke University

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCertreat.wmv

PDF of Presentation Handout:  Sickle Cell Disease and Emergency Department Use

2012-04-26 - Dr. Kathryn Hassell, University of Colorado Denver

Streaming Video: View Recording

PDF of Presentation Handout:  Sickle Cell – Adult Providers Network

2012-03-22 - CDC’s Division of Blood Disorders and RuSH Project States

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCrush.wmv

PDF of Presentation Handout:  Strategies from the Field – Community Partnership and Health Education

Medical Home Model for Sickle Cell Disease

2012-02-23 - Dr. Michael DeBaun, Vanderbilt University

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCHome.wmv

PDF of Presentation Handout:  Medical Home Model for Sickle Cell Disease

Transition of Care for Sickle Cell Disease - Pediatrics to Adult Care

2012-01-26 -Dr. Ify Osunkwo, Children’s Healthcare of Atlanta

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCTransition.wmv

PDF of Presentation Handout:  Transition of Care for Sickle Cell Disease - Pediatrics to Adult Care

The Use of Hydroxyurea for Sickle Cell Disease

2011-10-27 -Dr. Nancy Green, Columbia University Medical Center

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCHydrea.wmv

PDF of Presentation Handout:  [ coming soon ]

New York Blood Center’s ‘Precise Match’ Program

2011-09-22 - Dr. Yelena Ginzburg, New York Blood Center

Streaming Video: [ unavailable ]

PDF of Presentation Handout:  [ unavailable ]

Bone Marrow/Stem Cell Transplant Program – Retreat for Families and Patients

2011-08-25 - Dr. Lewis Hsu, Center for Cancer and Blood Disorders

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCHsu.wmv

PDF of Presentation Handout: A New Approach to Sickle Cell Family Education on Bone Marrow Transplantation

Transfusion Issues for Sickle Cell Disease and Thalassemia Patients

2011-07-28 - Dr. Rebecca Kruse-Jarres, Tulane University School of Medicine

Streaming Video:  mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCKruse.wmv

PDF of Presentation Handout: Transfusion Issues for Sickle Cell Disease and Thalassemia Patients

Vitamin Deficiency in Sickle Cell Disease

2011-05-26 - Dr Ify Osunkwo, Children’s Healthcare of Atlanta

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCvitDefSCD.wmv

PDF of Presentation Handout: Vitamin Deficiency in Sickle Cell Disease

New Born Screening Engagement with the Community

2011-04-28 -Dr. Allison Streetly, King’s College London

PDF of Presentation Handout: Newborn Screening Engagement with the Community

Iron overload in Children with Sickle Cell Disease

2011-03-24 - Dr. Tom Adamkiewicz, Morehouse College School of Medicine

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCIron.wmv

PDF of Presentation Handout: Iron overload in Children with Sickle Cell Disease

Sickle Cell Disease and Education

2011-01-27 -Dr. Simon Dyson, De Montfort University

Streaming Video: mms://realaudio.service.emory.edu/SOM/PA/PLATT/SICKLE/CDCDyson.wmv

PDF of Presentation Handout: Sickle Cell Disease and Education