Table of Contents
Patients, Families and Friends
Health Care Providers
|Resources 2 - World Wide Resources|
|Monday, 03 May 2010 10:06|
SickleCellKids.org needs you !
SickleCellKids.org is a web site for kids with Sickle Cell Disease (and their families and friends, too.) It is being developed for you right here at the Georgia Comprehensive Sickle Cell Center.
We want to include your art, stories and questions on the web site.
Think of what you would like to share with other children around the world who have sickle cell disease, too.
We want your…
We would like to see pictures you have made that are about you and sickle cell disease. They can be pictures of you triumphing in your life or even pictures that show how you feel when you are in pain. They can be of you and your family or maybe you and your best friend doing something fun.
Just like with the art, we would like you to write about you and sickle cell disease. You could write about how the disease makes you feel, or you could write about a time when you took care of yourself and really made progress. Anything you feel that you want to share with others is ok with us.
Submit questions about sickle cell disease that you would like to see answered on the web site. They can be questions about the disease, or even questions asking for advice on how to cope with certain situations.
If we put your work on the site you will be identified with only your first name, your age, and your city.
We will NEVER give out your personal information !
Sickle Cells Kids Website on TV News ( www.SickelCellKids.org )News Report - Footage courtesy of WAGA News, New World Communications of Atlanta Inc. All rights reserved. Click Here: Play (You will need Real player to view)
The Project - The Georgia Comprehensive Sickle Cell Center has teamed with Art© Heals to produce a web site that will help children suffering from sickle cell disease by providing information critical to their well being. This site is designed to be informative, attractive, fun, and easy to understand It will teach children about their disease, its treatment and, most importantly, about what they can do to make responsible and life-saving choices in caring for themselves. They will play games that are won by learning about their disease, they will communicate with other patients from around the world via an on-line message board, they will travel an animated journey through their bodies to learn how and why their blood sickles and what they can do to help prevent it from happening.
Due to the established international reputation of the Center, this site should quickly become a vital tool for educating pediatric patients around the world about this disease. There is no other product like it available to the public today. Web-based teaching is the most cost-effective method for reaching sickle cell patients in the home, the library, the school and the health care facility. While we will test site effectiveness through the use of focus groups, the good that can be done, the pain that can be allayed, and the lives that can be saved with a project such as this can not be measured.
The site is now up as a preview to show the different areas at www.SicklecellKids.org
The Project Director- Cynthia Gentry, founder and director of Art© Heals (www.art-heals.com) has been lifting children’s spirits through art since it was born as a volunteer project in 1995. Its efforts have included hand-painted murals for pediatric hospitals and camps for chronically ill children, book illustration (for example Jamie’s Journey: A Child’s Guide for the Bone Marrow Transplant Experience), website design, and more. Stories about Art© Heals and its founder, Cynthia Gentry, have appeared in the local, national and international press. Ms. Gentry was awarded the 1999 Unsung Heroine Award by the Ladies Auxiliary to the Veterans of Foreign Wars and the 1998 Children’s Advocate Award from the Keenan Kids’ Foundation for her murals in an inner-city hospital
Fundraising efforts have begun to raise the money needed to produce the web site. Contributions to the project are made payable to "The Henry Grady Foundation" for Sickle Cell Children's Web project," which is the non-profit fundraising arm of The Center’s parent, Grady Health Systems. All funds contributed will be spent specifically on this project. For more information about this project please contact:
Cynthia Gentry, Web Site Project Director, Art Heals 404-879-0969
|Last Updated on Monday, 03 May 2010 10:13|