Disclaimer: The following links are provided as a service to our users. This link does not imply endorsement or support of any programs or organizations. The Sickle Cell Information Center sponsors are not responsible for the content of the individual organization home pages.
World Wide Web Sites
CDC-Genetic Diseases – Sickle Cell Page – An excellent review of the chromosomal aspects of sickle cell, the US prevalence by state, and complication rates ( for high school Level).
Sickle Cell Disease Review – at http://scdreview.tripod.com/ a literature review, bibliography, and general information on the disease
Genes and Disease – Sickle Cell at http://www.ncbi.nlm.nih.gov/disease/sickle.html
Sickle Cell Disease What is sickle cell disease? at http://www.aafp.org/afp/20000901/1027ph.html
University of Rochester Hemoglobinopathies Brochures and Fact Sheets at http://www.urmc.rochester.edu/genetics/hemo.htm -This site has wonderful patient handouts on all of the common hemoglobinopaties and traits. This is a great resource for those involved with newborn screening and genetic counseling
Blood Cell Atlas at http://image.bloodline.net/category
Your Genes, Your Health. http://www.yourgenesyourhealth.org/ The module uses animations and video to explain the genetics, inheritance, mechanics and other aspects of sickle cell. This is a free resource developed by the Dolan DNA Learning Center as part of a grant funded project
Incidence of Sickle Cell in the US http://www.cdc.gov/genomics/info/books/21stcent4a.htm
National Library of Medicine MedLine Plus – Sickle Cell Anemia at http://www.nlm.nih.gov/medlineplus/sicklecellanemia.html This is a wonderful resource page with links to patient friendly information
Cells Alive – http://www.cellsalive.com/ouch.htm See red cells moving through blood vessels and how your body has a splinter.
Genetic Science Learning Center at http://gslc.genetics.utah.edu/ an excellent teaching site about genetics.
Mayo Clinic Sickle Cell Overview at http://www.mayoclinic.com/invoke.cfm?id=DS00324
National Newborn Screening and Genetics Resource Center web site: GeNeS-R-US, (Genetic and Newborn Screening Resource Center of the United States). http://genes-r-us.uthscsa.edu/
DNA Interactive – A fun learning site about genetics at http://www.dnai.org/index.html
The History of Sickle Cell Disease http://www.innvista.com/health/ailments/anemias/sickhist.htm
Washington University tutorial on sickle cell disease at http://www.nslc.wustl.edu/sicklecell/sicklecell.html
Kid-Friendly Sites
www.SicklecellKids.org is up and running – This demonstration of the new Web site for sickle cell education and inspiration is up for viewing. The full story of the author and design is at: New Sickle Cell Web site for Kids is in Development
BandAids and Blackboards at http://www.faculty.fairfield.edu/fleitas/contents.html A website, designed to improve the quality of life for children growing up with serious medical problems. The site contains their narratives, poetry, and tips for parents, health professionals and teachers, as well as many more pages of interactive resources, a hospital tour, and lesson plans. The site is the recipient of many awards, including a 2000 first prize in the Childnet International competition
Kids Health from the Nemours Foundation: This is an award winning site with information on many issues including sickle cell disease. The sickle cell information is divided into the following:
Site for Kids: http://www.kidshealth.org/kid/health_problems/blood/sickle_cell.html
Site for Teens: http://www.kidshealth.org/teen/diseases_conditions/blood/sickle_cell_anemia.html
Site for Parents: http://www.kidshealth.org/parent/medical/heart/sickle_cell_anemia.html
