People living with sickle cell disease may be eligible for financial assistance through the Social Security Administration (SSA). SSA offers aid to people and adults of all ages who are unable to work or participate in typical childhood activities. Sickle cell disease is listed as a qualifying condition. Monthly payments from SSA can be used for medical bills, paid medication, childcare, rent, travel expenses, and any other daily living needs. A social worker at your SCD clinic can help connect you with these resources.
Adults and children (i.e., those under age 18) may be eligible for Supplemental Security Income1, or SSI benefits. SSI is a Social Security disability program based on income. To qualify, a child’s/adult’s diagnosis must meet disability criteria AND the family must meet income guidelines. Eligible children/adults receive a cash benefit each month and Medicaid, and each month, you must report your wages, other income, and changes to your resources or living arrangements to continue receiving benefits. These are only awarded to the most financially needy Americans. The SSA created a guide2 on the social security disability evaluation process for adults living with sickle cell disease.
The easiest way to apply for Social Security disability benefits is through the online portal3. Applications can also be submitted in-person at a local SSA office4. In-person appointments can be made by calling 1-800-772-1213. It usually takes three to five months to hear back from the SSA. A social worker at your SCD clinic can help connect you with these resources.
In some cases, patients can use the TANF (Temporary Assistance For Needy Families) program5 until their 19th birthday. TANF is a program that helps families when parents or other relatives cannot provide for the family’s basic needs. The federal government provides grants to states to run the TANF program, and the program varies depending on the state.