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Additional Ways to Show Support

  • Learn about sickle cell disease and understand the challenges that may be faced. Have a plan of action with the individual that encourages them with hope for a better life living with sickle cell disease.
  • Invite a speaker from your local sickle cell organization or clinic to educate the entire class or staff about sickle cell disease.
  • Become involved in public awareness events, like walks, fun runs, kids camp and fund raisers.
  • Encourage blood donations and blood drives in your community, many people with sickle cell disease need transfusions to prevent strokes and other complications. Find a blood drive near you.
  • Support sickle cell research to discover new treatments.
  • Support sickle cell patients to be the best they can be.

Indicators of an Emergency Situation

Patients and families should watch for the following conditions that need an urgent medical evaluation:
• Fever of 101° F or higher
• Chest pain
• Shortness of breath
• Increasing tiredness
• Abdominal swelling
• Unusual headache
• Any sudden weakness or loss of feeling
• Pain that will not go away with home treatment
• Priapism (painful erection that will not go down)
• Sudden vision change

Learn more about sickle cell disease

Resources from:

Arise Initiative

ASH

CDC

NIH

SCDAA

Additional Ways to Show Support

  • Learn about sickle cell disease and understand the challenges that may be faced. Have a plan of action with the individual that encourages them with hope for a better life living with sickle cell disease.
  • Invite a speaker from your local sickle cell organization or clinic to educate the entire class or staff about sickle cell disease.
  • Become involved in public awareness events, like walks, fun runs, kids camp and fund raisers.
  • Encourage blood donations and blood drives in your community, many people with sickle cell disease need transfusions to prevent strokes and other complications. Find a blood drive near you.
  • Support sickle cell research to discover new treatments.
  • Support sickle cell patients to be the best they can be.

Indicators of an Emergency Situation

Patients and families should watch for the following conditions that need an urgent medical evaluation:
• Fever of 101° F or higher
• Chest pain
• Shortness of breath
• Increasing tiredness
• Abdominal swelling
• Unusual headache
• Any sudden weakness or loss of feeling
• Pain that will not go away with home treatment
• Priapism (painful erection that will not go down)
• Sudden vision change

Learn more about sickle cell disease

Resources from:

Arise Initiative

ASH

CDC

NIH

SCDAA

Additional Ways to Show Support

  • Learn about sickle cell disease and understand the challenges that may be faced. Have a plan of action with the individual that encourages them with hope for a better life living with sickle cell disease.
  • Invite a speaker from your local sickle cell organization or clinic to educate the entire class or staff about sickle cell disease.
  • Become involved in public awareness events, like walks, fun runs, kids camp and fund raisers.
  • Encourage blood donations and blood drives in your community, many people with sickle cell disease need transfusions to prevent strokes and other complications. Find a blood drive near you.
  • Support sickle cell research to discover new treatments.
  • Support sickle cell patients to be the best they can be.

Indicators of an Emergency Situation

Patients and families should watch for the following conditions that need an urgent medical evaluation:
• Fever of 101° F or higher
• Chest pain
• Shortness of breath
• Increasing tiredness
• Abdominal swelling
• Unusual headache
• Any sudden weakness or loss of feeling
• Pain that will not go away with home treatment
• Priapism (painful erection that will not go down)
• Sudden vision change

Learn more about sickle cell disease

Resources from:

Arise Initiative

ASH

CDC

NIH

SCDAA