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Accessing resources from national sickle cell disease organizations can help you stay informed about the latest guidelines, research, and support services. Check out some of the national resources below:  

 

Connecting with local organizations is also important. They often offer community-based support, education, and advocacy that is specific to where you live. Together, these resources can help you feel more supported and empowered in managing SCD. 

  • The Sickle Cell Disease Association of America (SCDAA) 
  • National Alliance of Sickle Cell Centers 

 

Georgia-based SCD Organizations and Programs:  

 
Check out the Sickle Cell Foundation of Georgia’s list of Community Based Organizations for more resources in Georgia. 

Indicators of an Emergency Situation

Patients and families should watch for the following conditions that need an urgent medical evaluation:
• Fever of 101° F or higher
• Chest pain
• Shortness of breath
• Increasing tiredness
• Abdominal swelling
• Unusual headache
• Any sudden weakness or loss of feeling
• Pain that will not go away with home treatment
• Priapism (painful erection that will not go down)
• Sudden vision change

Learn more about sickle cell disease