Accessing resources from national sickle cell disease organizations can help you stay informed about the latest guidelines, research, and support services. Check out some of the national resources below:
Connecting with local organizations is also important. They often offer community-based support, education, and advocacy that is specific to where you live. Together, these resources can help you feel more supported and empowered in managing SCD.
- The Sickle Cell Disease Association of America (SCDAA)
- National Alliance of Sickle Cell Centers
Georgia-based SCD Organizations and Programs:
- Comprehensive Sickle Cell Center at Grady Health System
- Lockhart-Morgan Foundation
- Augusta University Center for Blood Disorders
- The Association of Sickle Cell Lower Chattahoochee Region
Indicators of an Emergency Situation
Patients and families should watch for the following conditions that need an urgent medical evaluation:
• Fever of 101° F or higher
• Chest pain
• Shortness of breath
• Increasing tiredness
• Abdominal swelling
• Unusual headache
• Any sudden weakness or loss of feeling
• Pain that will not go away with home treatment
• Priapism (painful erection that will not go down)
• Sudden vision change