Disclaimer: The following links are provided as a service to our users. This link does not imply endorsement or support of any programs or organizations. The Sickle Cell Information Center sponsors are not responsible for the content of the individual organization home pages.

World Wide Web Sites

CDC-Genetic Diseases – Sickle Cell Page – An excellent review of the chromosomal aspects of sickle cell, the US prevalence by state, and complication rates ( for high school Level).

Sickle Hemoglobin Electron Micrograph at the University of Chicago http://gingi.uchicago.edu/  (link is broken)

Sickle Cell and Malaria Connection at http://www.physics.ohio-state.edu/~wilkins/writing/Samples/shortmed/nelson/sickle.html

Sickle Cell Anemia: A Case Study Approach to Teaching High School Genetics at http://chroma.mbt.washington.edu/outreach/genetics/sickle/ for grades 10 -12

NIH and The National Human Genome Research Institute (NHGRI) Curriculum Supplement is a creative, inquiry-based instruction program, designed to promote active learning and stimulate student interest in medical topics. The model is Sickle Cell Disease. http://science.education.nih.gov/supplements/nih1/genetic/default.htm (link is broken)

Sickle Cell Disease Review – at http://scdreview.tripod.com/ a literature review, bibliography, and general information on the disease

Genes and Disease – Sickle Cell at http://www.ncbi.nlm.nih.gov/disease/sickle.html

Sickle Cell Disease What is sickle cell disease? at http://www.aafp.org/afp/20000901/1027ph.html

University of Rochester Hemoglobinopathies Brochures and Fact Sheets at http://www.urmc.rochester.edu/genetics/hemo.htm -This site has wonderful patient handouts on all of the common hemoglobinopaties and traits. This is a great resource for those involved with newborn screening and genetic counseling

Donating Blood for Sickle Cell Patients – This is an excellent write up about all of the good reasons to donate blood for sickle cell patients.
WebMD Sickle Cell Information This article from the editors of Harvard Medical School’s Well Connected is an excellent review of Sickle Cell Disease and the current research – at http://my.webmd.com/topic_summary_article/DMK_ARTICLE_40076

AMA Fact sheet about sickle cell disease at http://www.ama-assn.org/insight/spec_con/patient/pat051.htm

Starbright releases the educational Sickle Cell CD -ROM – the Sickle Cell Slime-O-Rama Game is an interactive “quiz show” where players are challenged to answer questions about sickle cell disease and learn fundamental principles about disease management and adherence. The goal of the game is to provide children and teens with basic skills about communicating pain to adults, coping with a pain episode, and preventing more severe pain episodes. Designed for ages 6 to 14. Other resources on the CD include Blood Tests: Exploring Our Incredible Blood Targeted toward teens and pre-teens ages 10 to 15, Spotlight on IVs, and Medical Imaging: Welcome to the Radiology Center STARBRIGHT’s “Virtual Radiology Tour” go to STARBRIGHT’s web site at http://www.starbright.org/projects/hes/index.html

The Code Unraveled- a site devoted to genetics by students Clement Pang, Natasha Lee, Alvin Li at http://library.thinkquest.org/~C0122628

Gene therapy http://www.ornl.gov/hgmis/medicine/genetherapy.html

Human Genome project at http://www.ornl.gov/hgmis/project/info.html

All about Blood at http://sln.fi.edu/biosci/blood/blood.html

Blood facts at http://www.bloodbook.com/facts.html

Blood Cell Atlas at http://image.bloodline.net/category

Sickle Cell Tutorial – for students teachers, an patients. This page kindly sponsored by a grant from the NIH Science Education Partnership Award (SEPA) Program. http://k14education.uams.edu/SickleCell/about.html

Your Genes, Your Health. http://www.yourgenesyourhealth.org/ The module uses animations and video to explain the genetics, inheritance, mechanics and other aspects of sickle cell. This is a free resource developed by the Dolan DNA Learning Center as part of a grant funded project

Incidence of Sickle Cell in the US http://www.cdc.gov/genomics/info/books/21stcent4a.htm

History of Sickle Cell Discovery: Sickle Cell Research for Treatment and Cure commemorates the 30th anniversary of the the National Sickle Cell Anemia Control Act (P. L. 92-294). This is a historical look at sickle cell disease research and treatment up until the present moment. It is excellent for both patients, family members and health care providers. It is in Adobe format for download.  http://www.nhlbi.nih.gov/resources/docs/scd30/index.htm

National Library of Medicine MedLine Plus – Sickle Cell Anemia at http://www.nlm.nih.gov/medlineplus/sicklecellanemia.html This is a wonderful resouce page with links to patient friendly information

The U.S. Department of Energy Biological and Environmental Research program Genetic Disease Profile: Sickle Cell Anemia (Dept. of Energy, Human Genome Project) This has a history of the discovery and an excellent review at http://www.ornl.gov/hgmis/posters/chromosome/sca.html
Cells Alive – http://www.cellsalive.com/ouch.htm See red cells moving through blood vessels and how your body has a splinter.

Genetic Science Learning Center at http://gslc.genetics.utah.edu/ an excellent teaching site about genetics.

Kids MD http://www.kids-md.com/

Mayo Clinic Sickle Cell Overview at http://www.mayoclinic.com/invoke.cfm?id=DS00324

National Newborn Screening and Genetics Resource Center web site: GeNeS-R-US, (Genetic and Newborn Screening Resource Center of the United States). http://genes-r-us.uthscsa.edu/

DNA Interactive – A fun learning site about genetics at http://www.dnai.org/index.html

Genes and Disease at http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd.preface.91
“Morgan” – A Genetics Tutorial – Morgan is a multimedia tutorial that covers the basic principles of genetics with a molecular slant. Suitable for an advanced high school or introductory college biology class. http://morgan.rutgers.edu/MorganWebFrames/How_To_Use/HTU_frameset.html

The History of Sickle Cell Disease http://www.innvista.com/health/ailments/anemias/sickhist.htm
http://www.ecu.edu/medhum/newsletter/fall1998_p2.htm
https://www.bloodmed.com/home/hannpdf/bjh2557.pdf

New sickle cell web based teaching module on pain management at the Children’s Hospital of Pittsburgh http://www.chp.edu/centers/03_hema_sickle.php

Washington University tutorial on sickle cell disease at http://www.nslc.wustl.edu/sicklecell/sicklecell.html

Sickle Cell Anemia Research Today at http://sicklecellanemia.researchtoday.net/about-sicklecellanemia.htm

Kid-Friendly Sites

Planet Sickle – A kids site hosted by the Sickle Cell Society in the UK at http://www.sicklecellsociety.org/sicklescene/pshome.htm
www.SicklecellKids.org is up and running – This demonstration of the new Web site for sickle cell education and inspiration is up for viewing. The full story of the author and design is at: New Sickle Cell Web site for Kids is in Development

BandAids and Blackboards at http://www.faculty.fairfield.edu/fleitas/contents.html A website, designed to improve the quality of life for children growing up with serious medical problems. The site contains their narratives, poetry, and tips for parents, health professionals and teachers, as well as many more pages of interactive resources, a hospital tour, and lesson plans. The site is the recipient of many awards, including a 2000 first prize in the Childnet International competition

Starbright Foundation – for children and teens There are wonderful resources for sickle cell kids.  http://www.starbright.org/

Kids Health from the Nemours Foundation This is an award winning site with information on many issues including sickle cell disease. The sickle cell information is divided into the following:

Kids site: http://www.kidshealth.org/kid/health_problems/blood/sickle_cell.html

Teen Site: http://www.kidshealth.org/teen/diseases_conditions/blood/sickle_cell_anemia.html

Parent site: http://www.kidshealth.org/parent/medical/heart/sickle_cell_anemia.html

The Sickle Cell Anemia Gene at http://www.ornl.gov/hgmis/posters/chromosome/hbb.html

Kids MD http://www.kids-md.com/

Incidence and World Wide Distrubution

THE GEOGRAPHY OF SICKLE CELL DISEASE: OPPORTUNITIES FOR UNDERSTANDING ITS DIVERSITY by Graham R. Serjeant, MD, FRCP at http://www.kfshrc.edu.sa/annals/143/rev9239.html

CDC-Genetic Diseases – Sickle Cell Page – An excellent review of the chromosomal aspects of sickle cell, the US prevalence by state, and complication rates ( for high school Level) at: http://www.cdc.gov/genetics/hugenet/reviews/sickle.htm