• Healthcare Providers
  • Sample Page
  • Teachers and Students
  • Mission Statement
  • Sickle Cell on Instagram
  • About This Site

 

 
MENU
  • Home
  • About
    • About This Site
    • Mission Statement
    • Content Advisory Board
    • Contact
  • Resources For…
    • Patients & Families
      • Medical Resources
      • Children and Adolescents
      • Books
      • Multilingual Guides
    • Healthcare Providers
      • Medical Resources and Information
      • Problem-Oriented Clinical Guidelines
      • Clinical Trial & Pharmaceutical News
      • Sickle Cell Research from PubMed
      • Multilingual Resources
    • Teachers & Students
      • General Information
      • Handouts and Handbooks
      • Multilingual Resources
      • Powerpoint Tutorials
    • Blood Banks & Donors
    • Employers
  • Perspectives
    • Patient Narratives
      • Written Letters and Stories
      • Videos
    • Stories, Art, & Music
      • Books, Literature, and Reading
      • Music and Spoken Word
      • Visual Art
    • Historical Perspectives
      • General Information
      • Research Articles
      • Books
      • Primary Documents
      • Images
    • Sickle Cell on Instagram
  • Sickle Cell Organizations
    • State
    • National
    • International
  • Newsletter
 

Patients and Families

Posts
  • no image added yet.
    0

    Qualifying for Social Security Disability with Sickle Cell Disease

    May 1, 2018
  • 1

    Find out what Clinical Trials for Sickle Cell are Taking Place Around the World!

    December 15, 2015
  • 0

    What are the complications of Sickle Cell Disease?

    November 14, 2015
  • 0

    Stepping Up to Adult Care

    November 6, 2015
  • 0

    I Only Cry At Night

    November 4, 2015
  • 0

    A Parents’ Handbook for Sickle Cell Disease

    November 4, 2015
 
  • Indicators of an Emergency Situation

    Patients and families should watch for the following conditions that need an urgent medical evaluation:
    • Fever of 101° F or higher
    • Chest pain
    • Shortness of breath
    • Increasing tiredness
    • Abdominal swelling
    • Unusual headache
    • Any sudden weakness or loss of feeling
    • Pain that will not go away with home treatment
    • Priapism (painful erection that will not go down)
    • Sudden vision change
 
Medical Resources
Addiction Resources
Understanding the Impact of Sickle Cell Disease
Mobile Apps for Sickle Cell Patients
FDA Campaign for Clinical Trial Diversity
Addiction Guide
What to Know About Low THC (Cannabis) Oil Use in Georgia
Parent’s Guide to Cord Blood Foundation
FDA Be Safe Online Prescription Campaign
Sickle Cell Anemia Information Portal from the Mayo Clinic
Sickle Cell Anemia Information Portal on MedlinePlus
Books
Hope & Destiny Jr.: The Adolescent’s Guide to Sickle Cell Disease
Hope and Destiny
How My Daughter Is a Survivor of Sickle Cell Disease
I Only Cry At Night
Living With Sickle Cell Disease: The Struggle to Survive
My Brother Has Sickle Cell
Resilience: A Personal Story of Coping with the Ravages of Sickle Cell Disease… Against All Odds
Sickle Cell Natural Healing: A Mother’s Journey
Other Resources
Available Scholarships for Student Caregivers
Financial Aid Guides for Women from OEDB.org
The Best Scholarship Search Platforms of 2017
World Sickle Cell Day 2016 Photo Gallery
 
Sickle Cell and Children
Educational Coloring Book for Children: The Bear Necessities of Sickle Cell
Qualifying for Social Security Disability with Sickle Cell Disease
CHECK – Medicaid Care Coordination for Families with Sickle Cell
Sickle Cell Disease Information for Parents
What Is Sickle Cell Disease? Information for Teens
Robbie the Red Blood Cell – A Buyable Coloring Book for Children
Do You Know About Sickle Cell Anemia? Information for Kids
Stepping Up to Adult Care
Camps for Children with Sickle Cell
Bobby Blood Cell – A coloring book adventure in preventing sickle cell problems
Multilingual Patient Guides
MedlinePlus en Español
Asociacion American de la Anemia de Celulas Faciforme
English and Spanish Handouts for Families and Schools
Portuguese Sickle Cell Guide for Patients from Brazil
Newsletter
Sickle Cell News January 2021
Sickle Cell News for December 2020
Sickle Cell News for November 2020
Sickle Cell News for October 2020
Sickle Cell News for September 2020
Sickle Cell News for August 2020
Sickle Cell News for July 2020
Sickle Cell News for June 2020
Sickle Cell News for May 2020
Sickle Cell News for April 2020
 
  • RSS Sickle Cell News from Around the Web

  • City Spotlights

    Learn about sickle cell resources in: Atlanta, Georgia; Oakland, California
 

Notice


This site is designed to support, not replace, the patient-physician relationship. Patients should always check with their doctors before making any changes in their medication or treatment.


Copyright

© 2016, Sickle Cell Information Center
 

About this Site

This site is a collaboration between members of the Emory Center for Digital Scholarship, the Aflac Cancer and Blood Disorders Center of Children's Healthcare of Atlanta, the Emory School of Medicine, and the Comprehensive Sickle Cell Center at Grady Health System, Atlanta, Georgia. The Editorial Board of the Sickle Cell Information Center manages content of the site, but is not responsible for any inaccuracies in content or links provided. In no way will the participating entities, the Editorial Board, our contributors, or any participants be held responsible for any problems that might occur, or any damage or loss sustained due to the use of information (or inadequate or incomplete information) that may be contained on the site.

 

Contact Us


Mailing Address
Emory Center for Digital Scholarship
201 Dowman Drive
Atlanta, Georgia 30322 USA

Email
Allan Platt, PA-C, MMSc
aplatt@emory.edu

Phone: 404-727-7857
Fax: 404-727-7880