Qualifying for Social Security Disability with Sickle Cell Disease
Download this page in PDF format: Qualifying for Medical Benefits If you or your child has sickle cell anemia, you may be eligible for financial assistance. The Social Security Administration (SSA) offers aid to people and adults of all ages who are unable to work or participate in typical childhood activities. Sickle cell disease is listed […]
Find out what Clinical Trials for Sickle Cell are Taking Place Around the World!
A searchable map offered by ClinicalTrials.gov
What are the complications of Sickle Cell Disease?
What are the possible complications of sickle cell disease, and what can be done to help these complications?
Stepping Up to Adult Care
This guide will assist programs in developing and establishing a transition program from pediatric to adult care for youth with chronic medical conditions.
I Only Cry At Night
Author: P. Allen Jones
This is a personal story about overcoming many obstacles including sickle cell disease. P. Allen struggled out of poverty to a federal executive career despite living in pain. This book is an inspiration to anyone, especially those suffering with sickle cell disease.
A Parents’ Handbook for Sickle Cell Disease
From The Virginia Sickle Cell Awareness Program