Educational Coloring Book for Children: The Bear Necessities of Sickle Cell
Coloring is a popular pastime that both children and adults enjoy. It has recently become more popular for adults because of the calming effect of
Qualifying for Social Security Disability with Sickle Cell Disease
Download this page in PDF format: Qualifying for Medical Benefits If you or your child has sickle cell anemia, you may be eligible for financial assistance.
CHECK – Medicaid Care Coordination for Families with Sickle Cell
CHECK’s mission is to improve the coordination of health care for children and young adults with chronic conditions by engaging and collaborating with them, their families, and their communities to provide tailored disease specific programs and to reduce their barriers to accessing medical, behavioral, and social services. CHECK provides modules on youth and parent sickle cell education. CHECK was developed for the Centers for Medicare and Medicaid Innovations CHECK project, copyright University of Illinois Board of Trustees. Read more…
Sickle Cell Disease Information for Parents
Usually, red blood cells (RBCs) are shaped like round discs. People who have sickle cell disease, though, have RBCs that are shaped like sickles, or crescent moons. This defect can cause painful episodes, serious infections, chronic anemia, and damage to body organs.
Read more at KidsHealth
What Is Sickle Cell Disease? Information for Teens
Sickle cell disease is a blood disorder that’s inherited — meaning it’s passed down from parents to their children. Babies are born with sickle cell disease when they inherit two abnormal genes (one from each parent). These genes cause the body’s red blood cells to change shape.
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Do You Know About Sickle Cell Anemia? Information for Kids
Have you ever seen a sickle? It’s a farm tool with a curved, sharp edge for cutting wheat. Sickle cell anemia (say: uh-NEE-mee-uh) is a disease of the blood. It gets its name because a person’s red blood cells are shaped like sickles, or crescent moons, instead of their usual round, disc shape.
Read more at KidsHealth
Stepping Up to Adult Care
This guide will assist programs in developing and establishing a transition program from pediatric to adult care for youth with chronic medical conditions.
Bobby Blood Cell – A coloring book adventure in preventing sickle cell problems
By Donna Dent
Keisha’s Transfusions and Desferal™ Therapy – An Educational Coloring Book for Children with Sickle Cell Disease
By Donna Dent and Beatrice Gee, MD
A Parents’ Handbook for Sickle Cell Disease
From The Virginia Sickle Cell Awareness Program
The Child with Sickle Cell Disease: A Teaching Manual
Written and Developed by Debra A. Vedro, MSN, RN, CPNP And Rebecca A. Morrison, MSN, RN, CPNP at the Children’s Medical Center of Dallas, Dallas, Texas.
Indicators of an Emergency Situation
Patients and families should watch for the following conditions that need an urgent medical evaluation:
• Fever of 101° F or higher
• Chest pain
• Shortness of breath
• Increasing tiredness
• Abdominal swelling
• Unusual headache
• Any sudden weakness or loss of feeling
• Pain that will not go away with home treatment
• Priapism (painful erection that will not go down)
• Sudden vision change
City spotlights
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