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Addiction Resources

By Erin Hecht On May 13, 2018 · Add Comment · In Patients and Families - Medical Information
Addiction Resource Addiction Resource is a dedicated organization that works to better the community through volunteering and health awareness.  Addiction Resource  raises awareness of the impact of drug use (including alcohol) on the human body. Combined Effects of Smoking and Drinking Vaping Daily provides an article about combined effects of drinking and smoking on the [...]
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Understanding the Impact of Sickle Cell Disease

By Erin Hecht On September 24, 2016 · Add Comment · In Healthcare Providers, Healthcare Providers - Medical Resources and Information, Patients and Families - Medical Information
This infographic for sickle cell awareness was produced by the new Sickle Cell Disease Coalition, formed by American Society of Hematology.
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Mobile Apps for Sickle Cell Patients

By calovel On July 2, 2016 · Add Comment · In Patients and Families - Medical Information
  Sickle Cell Services By Bedford, Louis & Ellicott, LLC The Sickle Cell Disease Association of America, Inc. (SCDAA) has released The Sickle Cell Services Mobile App. It provides members of the SCD community access to a database of medical and support services, national news, live message feed from SCDAA and also incorporates a messaging [...]
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FDA Campaign for Clinical Trial Diversity

By calovel On June 20, 2016 · Add Comment · In Healthcare Providers - Medical Resources and Information, Patients and Families - Medical Information
FDA is releasing six public service announcements, a blog, and an infographic to encourage people of diverse races and ethnicities to participate in clinical trials. You can be a #ClinicalTrialsChampion by sharing these resources far and wide! Spread the word: a person’s race or ethnicity can affect how his or her body responds to medicine.
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Addiction Guide

By calovel On June 14, 2016 · Add Comment · In Patients and Families - Medical Information
Addiction Guide was created to provide the most comprehensive up-to-date information about various addictions and how to overcome them. We are not a treatment center, but through our network of centers and connections across the country we can provide outlets for people seeking help. We are a diverse team of recovering addicts, healthcare professionals, and patient advocates who can provide you with tools and advice to help you regain control of your life. By increasing awareness and including this resource on your page, millions of Americans across the globe will have the best opportunity to find the right treatment for them and improve their quality of life. Our mission at Addiction Guide is to serve you. By spreading awareness, more and more people can become educated about their treatment options. We understand that there is no perfect formula for recovery. Everyone’s journey is different but we firmly believe that with the right help, a personalized recovery plan can be created for everyone. Visit www.addictionguide.com to learn more.
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What to Know About Low THC (Cannabis) Oil Use in Georgia

By calovel On June 13, 2016 · Add Comment · In Patients and Families - Medical Information
In April 2015, Georgia Gov. Nathan Deal signed into law the Haleigh’s Hope Act. This law legalizes the medical use of low-THC oil (cannabidiol or cannabis oil) for alternative treatment of certain approved medical conditions in children and adults, including sickle cell. For sickle cell patients, the diagnosis must be severe or end stage, as determined by the physician. Visit the Children’s Healthcare of Atlanta (http://www.choa.org/Patients-Families/During-Visit/Childrens-Hospital-Patient-Safety/Medicine-Safety/Low-THC-Cannabis-Oil) and/or the Georgia Department of Public Health (http://dph.georgia.gov/low-thc-oil-registry) websites to learn more about low THC oil.
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Parent’s Guide to Cord Blood Foundation

By calovel On March 18, 2016 · Add Comment · In Patients and Families - Medical Information
Cord blood treats over 80 diseases including leukemia and lymphoma. Donations are painless and are being used to save the lives of children and adults around the world. To learn more and download a free guide, click here.
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FDA Be Safe Online Prescription Campaign

By calovel On February 12, 2016 · Add Comment · In Patients and Families - Medical Information
Before you consider purchasing prescription medicines from an online pharmacy, especially one that’s not associated with a health insurance plan or local “brick and mortar” pharmacy, check out FDA’s BeSafeRx – Know Your Online Pharmacy website and resources.
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Sickle Cell Anemia Information Portal from the Mayo Clinic

By calovel On January 1, 2016 · Add Comment · In Patients and Families - Medical Information
Sickle cell anemia is an inherited form of anemia — a condition in which there aren't enough healthy red blood cells to carry adequate oxygen throughout your body. Normally, your red blood cells are flexible and round, moving easily through your blood vessels. In sickle cell anemia, the red blood cells become rigid and sticky and are shaped like sickles or crescent moons. These irregularly shaped cells can get stuck in small blood vessels, which can slow or block blood flow and oxygen to parts of the body. Read more at the Mayo Clinic
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Sickle Cell Anemia Information Portal on MedlinePlus

By calovel On January 1, 2016 · Add Comment · In Patients and Families - Medical Information
Sickle cell anemia is a disease in which your body produces abnormally shaped red blood cells. The cells are shaped like a crescent or sickle. They don't last as long as normal, round red blood cells. This leads to anemia. The sickle cells also get stuck in blood vessels, blocking blood flow. This can cause pain and organ damage. Read more at MedlinePlus
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About the Americans with Disabilities Act

By calovel On December 28, 2015 · Add Comment · In Employers, Patients and Families - Medical Information
Too often in the past, people with sickle cell disease were denied jobs or fair treatment at work solely because they had sickle cell disease. Now, the Americans With Disabilities Act of 1990 puts the strong arm of the law on the side of fairness. It protects many people with sickle cell disease from job [...]
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Find out what Clinical Trials for Sickle Cell are Taking Place Around the World!

By calovel On December 15, 2015 · Add Comment · In Healthcare Providers - Featured Resources, Patients and Families - Featured Resources, Patients and Families - Medical Information, Pharmaceuticals, Pharmaceuticals - Featured Articles
A searchable map offered by ClinicalTrials.gov
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What is Sickle Cell Disease and Trait?

By calovel On November 16, 2015 · Add Comment · In Patients & Families, Patients and Families - Medical Information
Sickle Cell disease is a group of inherited red blood cell disorders. It is the most common genetic disease in the US. About 100,000 Americans have sickle cell disease. This article includes a link to a handout for printing and distribution.
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What are the complications of Sickle Cell Disease?

By calovel On November 14, 2015 · Add Comment · In Patients & Families, Patients and Families - Featured Resources, Patients and Families - Medical Information
What are the possible complications of sickle cell disease, and what can be done to help these complications?
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About Sickle Cell Disease

By calovel On November 11, 2015 · Add Comment · In Blood Banks & Donors, Patients & Families, Patients and Families - Medical Information, Teachers & Students, Teachers and Students - General Information
A list of frequently asked questions concerning basic information about sickle cell disease.  Includes a printable fact sheet.
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Fast Facts on Hemoglobin Variants

By calovel On November 4, 2015 · Add Comment · In Patients & Families, Patients and Families - Medical Information
Fact sheets on various hemiglobin variants.
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A Parents’ Handbook for Sickle Cell Disease

By calovel On November 4, 2015 · Add Comment · In Patients & Families, Patients and Families - Children, Patients and Families - Featured Resources, Patients and Families - Medical Information
From The Virginia Sickle Cell Awareness Program
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A Counseling Handbook for Sickle Cell and Other Hemoglobinopathies

By calovel On November 4, 2015 · Add Comment · In Patients & Families, Patients and Families - Medical Information, Teachers & Students, Teachers and Students - Featured Resources, Teachers and Students - Handouts and Handbooks
A complete guide for counseling and education for the most common hemoglobin variants identified through Virginia’s sickle cell screening program.
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Sickle Cell Trait (SCT) and Athletics

By calovel On July 28, 2015 · Add Comment · In Patients & Families, Patients and Families - Medical Information, Teachers & Students, Teachers and Students - Featured Resources, Teachers and Students - General Information
Exercise and athletic activity are important parts of a healthy life style.  Sickle cell trait should not stop anyone from participating fully in athletics.  This page provides resources and information about athletic activity for those with sickle cell.
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Template for Patient & Family Needs Assessment

By calovel On July 28, 2015 · Add Comment · In Healthcare Providers, Healthcare Providers - Medical Resources and Information, Patients & Families, Patients and Families - Medical Information
This form is designed to help facilitate understanding of the family's circumstances, knowledge of sickle cell disease, and satisfaction with health care and to identify patient and family concerns and potential barriers to appropriate treatment. It should be completed by the family when the child is not ill (e.g. in the waiting room prior to a clinic visit) and subsequently reviewed with the family by a health care provider.
Read More »
 
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    Learn about sickle cell resources in: Atlanta, Georgia; Oakland, California
 

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This site is designed to support, not replace, the patient-physician relationship. Patients should always check with their doctors before making any changes in their medication or treatment.


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About this Site

This site is a collaboration between members of the Emory Center for Digital Scholarship, the Aflac Cancer and Blood Disorders Center of Children's Healthcare of Atlanta, the Emory School of Medicine, and the Comprehensive Sickle Cell Center at Grady Health System, Atlanta, Georgia. The Editorial Board of the Sickle Cell Information Center manages content of the site, but is not responsible for any inaccuracies in content or links provided. In no way will the participating entities, the Editorial Board, our contributors, or any participants be held responsible for any problems that might occur, or any damage or loss sustained due to the use of information (or inadequate or incomplete information) that may be contained on the site.

 

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