Sickle Cell Natural Healing: A Mother’s Journey
Author: Tamika Moseley
After spending every three months of her newborn’s life in the hospital managing his sickle cell disease, Tamika Moseley knew she had to change what she was doing or the hospital would be her second home. In this deeply personal book, Tamika shares her story of the difficult journey she took to find natural ways to treat her son’s debilitating disease.
My Brother Has Sickle Cell
Author: Erica Gamble
From mom, professor, author and life coach Dr. Erica Gamble – a heartwarming story about a boy who happens to have sickle cell, based on her son, who has the disease.
Living With Sickle Cell Disease: The Struggle to Survive
Authors: Judy Gray Johnson and Leroy Williams Jr.
Living with Sickle Cell Disease: The Struggle to Survive is a story of Judy Gray Johnson’s perseverance in the face of living with a little-understood chronic illness.
I Only Cry At Night
Author: P. Allen Jones
This is a personal story about overcoming many obstacles including sickle cell disease. P. Allen struggled out of poverty to a federal executive career despite living in pain. This book is an inspiration to anyone, especially those suffering with sickle cell disease.
Resilience: A Personal Story of Coping with the Ravages of Sickle Cell Disease… Against All Odds
Author: Judy Johnson
This book strengthens the resolve for those suffering from sickle cell disease in particular and anyone that may have a disability. This should be recommended reading for parents, educators, and anyone in the workplace who supervise those who may be classified as disabled.
Hope & Destiny Jr.: The Adolescent’s Guide to Sickle Cell Disease
Authors: Lewis L. Hsu M.D., Ph.D., Carmen C. M. Rodrigues RN, Silvia R. Brandalise M.D., Angela Vennemann, and Tifani Carter
Currently in its 3rd edition, Hope & Destiny offers the latest information on scientific research, preventing complications and treatment for sickle cell disease in an easy-to-read adult format.
Hope and Destiny
Authors:Alan Sacerdote M.D., Allen Platt, Allan F. Platt Jr. P.A.-C. M.M.Sc., M D Sacerdote
An up-to-date, informative, and personal discussion of sickle-cell anemia, this guide provides information on medically proven methods of treatment along with patient vignettes. Written primarily for African Americans, who comprise the majority of the victims of sickle-cell anemia, this handbook examines the complex issues that surround this genetic disease.
Indicators of an Emergency Situation
Patients and families should watch for the following conditions that need an urgent medical evaluation:
• Fever of 101° F or higher
• Chest pain
• Shortness of breath
• Increasing tiredness
• Abdominal swelling
• Unusual headache
• Any sudden weakness or loss of feeling
• Pain that will not go away with home treatment
• Priapism (painful erection that will not go down)
• Sudden vision change
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