CHECK – Medicaid Care Coordination for Families with Sickle Cell - CHECK's mission is to improve the coordination of health care for children and young adults with chronic conditions by engaging and collaborating with them, their families, and their communities to provide tailored disease specific programs and to reduce their barriers to accessing medical, behavioral, and social services. CHECK provides modules on youth and parent sickle cell education. CHECK was developed for the Centers for Medicare and Medicaid Innovations CHECK project, copyright University of Illinois Board of Trustees. Read more...
Sickle Cell Disease Information for Parents - Usually, red blood cells (RBCs) are shaped like round discs. People who have sickle cell disease, though, have RBCs that are shaped like sickles, or crescent moons. This defect can cause painful episodes, serious infections, chronic anemia, and damage to body organs. Read more at KidsHealth
What Is Sickle Cell Disease? Information for Teens - Sickle cell disease is a blood disorder that's inherited — meaning it's passed down from parents to their children. Babies are born with sickle cell disease when they inherit two abnormal genes (one from each parent). These genes cause the body's red blood cells to change shape. Read more at KidsHealth
Robbie the Red Blood Cell – A Buyable Coloring Book for Children - Purchase online here
Do You Know About Sickle Cell Anemia? Information for Kids - Have you ever seen a sickle? It's a farm tool with a curved, sharp edge for cutting wheat. Sickle cell anemia (say: uh-NEE-mee-uh) is a disease of the blood. It gets its name because a person's red blood cells are shaped like sickles, or crescent moons, instead of their usual round, disc shape. Read more at KidsHealth
Stepping Up to Adult Care - This guide will assist programs in developing and establishing a transition program from pediatric to adult care for youth with chronic medical conditions.
Camps for Children with Sickle Cell - Camps are listed by state and age group.
Keisha’s Transfusions and Desferal™ Therapy – An Educational Coloring Book for Children with Sickle Cell Disease - By Donna Dent and Beatrice Gee, MD
A Parents’ Handbook for Sickle Cell Disease - From The Virginia Sickle Cell Awareness Program