• Healthcare Providers
  • Sample Page
  • Teachers and Students
  • Mission Statement
  • Sickle Cell on Instagram
  • About This Site

 

 
MENU
  • Home
  • About
    • About This Site
    • Mission Statement
    • Content Advisory Board
    • Contact
  • Resources For…
    • Patients & Families
      • Medical Resources
      • Children and Adolescents
      • Books
      • Multilingual Guides
    • Healthcare Providers
      • Medical Resources and Information
      • Problem-Oriented Clinical Guidelines
      • Clinical Trial & Pharmaceutical News
      • Sickle Cell Research from PubMed
      • Multilingual Resources
    • Teachers & Students
      • General Information
      • Handouts and Handbooks
      • Multilingual Resources
      • Powerpoint Tutorials
    • Blood Banks & Donors
    • Employers
  • Perspectives
    • Patient Narratives
      • Written Letters and Stories
      • Videos
    • Stories, Art, & Music
      • Books, Literature, and Reading
      • Music and Spoken Word
      • Visual Art
    • Historical Perspectives
      • General Information
      • Research Articles
      • Books
      • Primary Documents
      • Images
    • Sickle Cell on Instagram
  • Sickle Cell Organizations
    • State
    • National
    • International
  • Newsletter
 

Uncertain Suffering (2009)

By calovel On March 18, 2016 · Add Comment · In Historical Perspectives - Books
In a wide ranging analysis that moves from individual patient cases to the compassionate yet distanced professionalism of health care specialists to the level of national policy, Carolyn Moxley Rouse uncovers the cultural assumptions that shape the quality and delivery of care for sickle cell patients. She reveals a clinical world fraught with uncertainties over how to treat black patients given resource limitations and ambivalence. Learn more and buy the book on Amazon.
Read More »

Managing Sickle Cell Disease: In Low-Income Families (2003)

By calovel On March 18, 2016 · Add Comment · In Historical Perspectives - Books
Shirley A. Hill examines how low-income African American mothers with children suffering from this hereditary, incurable, and chronically painful disease, react to the diagnosis and manage their family's health care.  Learn more and purchase the book on Amazon.
Read More »

Backdoor to Eugenics (2003)

By calovel On March 18, 2016 · Add Comment · In Historical Perspectives - Books
Considered a classic in the field, Troy Duster's Backdoor to Eugenics was a groundbreaking book that grappled with the social and political implications of the new genetic technologies. Completely updated and revised, this work will be welcomed back into print as we struggle to understand the pros and cons of prenatal detection of birth defects; gene therapies; growth hormones; and substitute genetic answers to problems linked with such groups as Jews, Scandanavians, Native American, Arabs and African Americans. Duster's book has never been more timely.  Learn more and purchase the book on Amazon.
Read More »

People’s Science: Bodies and Rights on the Stem Cell Frontier (2013)

By calovel On March 18, 2016 · Add Comment · In Historical Perspectives - Books
People's Science uncovers the tension between scientific innovation and social equality, taking the reader inside California's 2004 stem cell initiative, the first of many state referenda on scientific research, to consider the lives it has affected.
Read More »

Body & Soul: The Black Panther Party and the Fight against Medical Discrimination (2013)

By calovel On December 2, 2015 · Add Comment · In Historical Perspectives - Books, Historical Perspectives - Featured Articles
Author: Alondra Nelson  Alondra Nelson deftly recovers an indispensable but lesser-known aspect of the organization’s broader struggle for social justice: health care.
Read More »

The Social Life of DNA (2016)

By calovel On December 2, 2015 · Add Comment · In Historical Perspectives - Books, Historical Perspectives - Featured Articles
Authors: Alondra Nelson In The Social Life of DNA, Nelson explains how cutting-edge DNA-based techniques are being used in myriad ways, including grappling with the unfinished business of slavery: to foster reconciliation, to establish ties with African ancestral homelands, to rethink and sometimes alter citizenship, and to make legal claims for slavery reparations specifically based on ancestry.
Read More »

Genetics and Global Public Health: Sickle Cell and Thalassaemia (2012)

By calovel On December 2, 2015 · Add Comment · In Historical Perspectives - Books, Historical Perspectives - Featured Articles
Authors:  Simon M. Dyson & Karl Atkin Genetics and Global Public Health presents a new concluding chapter which highlights the critical nature of social science research for sickle cell and thalassaemia communities, providing key insights into the social contexts of human behaviour and analysing how societal arrangements could change to assist people living with either condition.
Read More »

In the Blood: Sickle Cell Anemia and the Politics of Race (1998)

By calovel On December 2, 2015 · Add Comment · In Historical Perspectives - Books, Historical Perspectives - Featured Articles
Author: Melbourne Tapper In the Blood argues that ever since the discovery in 1910 and subsequent scientific analysis of the disease, sickle cell anemia has been manipulated to serve social ends-as a tool for securing white identity and a way to establish a hierarchy based on European heritage.  
Read More »

The Enculturated Gene: Sickle Cell Health Politics and Biological Difference in West Africa (2011)

By calovel On December 2, 2015 · Add Comment · In Historical Perspectives - Books, Historical Perspectives - Featured Articles
Author: Duana Wiley  The Enculturated Gene reveals how the notion of an advantageous form of sickle cell in this part of West Africa has defined – and obscured – the nature of this illness in Senegal today.  
Read More »

The Troubled Dream of Genetic Medicine (2008)

By calovel On December 2, 2015 · Add Comment · In Historical Perspectives - Books
Authors: Keith Wailco & Stephen Pemberton In this captivating account, historians Keith Wailoo and Stephen Pemberton reveal how Tay-Sachs, cystic fibrosis, and sickle cell disease―fraught with ethnic and racial meanings for many Americans―became objects of biological fascination and crucibles of social debate.
Read More »

Dying in a City of Blues: Sickle Cell Anemia and the Politics of Race and Health (2001)

By calovel On December 2, 2015 · Add Comment · In Historical Perspectives - Books
Author:  Keith Wailoo This groundbreaking book chronicles the history of sickle cell anemia in the United States, tracing its transformation from an "invisible" malady to a powerful, yet contested, cultural symbol of African American pain and suffering.  
Read More »
 
  • Popular
  • Recent
  • Comments
  • Tags
  • Find out what Clinical Trials for Sickle Cell are Taking Place Around the World!A searchable map offered by ClinicalTrials.gov
  • Sickle Cell Newsletter for July 2016News   Up to $25 million in Funding for Management [...]
  • Mobile Apps for Sickle Cell Patients  Sickle Cell Services By Bedford Louis & Ellicott LLC [...]
  • City Spotlight: Oakland, CaliforniaShining the sickle cell spotlight on Oakland California reveals a [...]
  • Sickle Cell News January 2021To join or leave the listserv visit https://scinfo.org/newsletter/ MARAC Advisory [...]
  • Sickle Cell News for December 2020To join or leave the listserv visit https://scinfo.org/newsletter/ Help Spread [...]
  • Sickle Cell News for November 2020To join or leave the listserv visit https://scinfo.org/newsletter/ SCDC UpdateOctober [...]
  • Sickle Cell News for October 2020To join or leave the listserv visit https://scinfo.org/newsletter/ Spread the [...]
  • RSS Sickle Cell News from Around the Web

  • City Spotlights

    Learn about sickle cell resources in: Atlanta, Georgia; Oakland, California
 

Notice


This site is designed to support, not replace, the patient-physician relationship. Patients should always check with their doctors before making any changes in their medication or treatment.


Copyright

© 2016, Sickle Cell Information Center
 

About this Site

This site is a collaboration between members of the Emory Center for Digital Scholarship, the Aflac Cancer and Blood Disorders Center of Children's Healthcare of Atlanta, the Emory School of Medicine, and the Comprehensive Sickle Cell Center at Grady Health System, Atlanta, Georgia. The Editorial Board of the Sickle Cell Information Center manages content of the site, but is not responsible for any inaccuracies in content or links provided. In no way will the participating entities, the Editorial Board, our contributors, or any participants be held responsible for any problems that might occur, or any damage or loss sustained due to the use of information (or inadequate or incomplete information) that may be contained on the site.

 

Contact Us


Mailing Address
Emory Center for Digital Scholarship
201 Dowman Drive
Atlanta, Georgia 30322 USA

Email
Allan Platt, PA-C, MMSc
aplatt@emory.edu

Phone: 404-727-7857
Fax: 404-727-7880