A Bit About Blood Transfusions
You’d probably feel a lot better if blood just stayed inside your body where it belongs. But blood transfusions save lives every day. Hospitals need blood for people who are injured, as well as for patients having heart surgery, organ transplants, cancer treatments, and treatments for other diseases that affect the blood, like sickle cell anemia.
Read more here.
American Red Cross: Why you Should Designate Your Donation for a Sickle Cell Patient
Spoken Word Poet: Jasmine Bailey
Jasmine Bailey was a spoken word poet and sickle cell advocate. Bailey was diagnosed with sickle cell anemia at birth, and strived to support those who are affected by the disease.
Body & Soul: The Black Panther Party and the Fight against Medical Discrimination (2013)
Author: Alondra Nelson
Alondra Nelson deftly recovers an indispensable but lesser-known aspect of the organization’s broader struggle for social justice: health care.
The Social Life of DNA (2016)
Authors: Alondra Nelson
In The Social Life of DNA, Nelson explains how cutting-edge DNA-based techniques are being used in myriad ways, including grappling with the unfinished business of slavery: to foster reconciliation, to establish ties with African ancestral homelands, to rethink and sometimes alter citizenship, and to make legal claims for slavery reparations specifically based on ancestry.
Genetics and Global Public Health: Sickle Cell and Thalassaemia (2012)
Authors: Simon M. Dyson & Karl Atkin
Genetics and Global Public Health presents a new concluding chapter which highlights the critical nature of social science research for sickle cell and thalassaemia communities, providing key insights into the social contexts of human behaviour and analysing how societal arrangements could change to assist people living with either condition.
In the Blood: Sickle Cell Anemia and the Politics of Race (1998)
Author: Melbourne Tapper
In the Blood argues that ever since the discovery in 1910 and subsequent scientific analysis of the disease, sickle cell anemia has been manipulated to serve social ends-as a tool for securing white identity and a way to establish a hierarchy based on European heritage.
The Enculturated Gene: Sickle Cell Health Politics and Biological Difference in West Africa (2011)
Author: Duana Wiley
The Enculturated Gene reveals how the notion of an advantageous form of sickle cell in this part of West Africa has defined – and obscured – the nature of this illness in Senegal today.
The Troubled Dream of Genetic Medicine (2008)
Authors: Keith Wailco & Stephen Pemberton
In this captivating account, historians Keith Wailoo and Stephen Pemberton reveal how Tay-Sachs, cystic fibrosis, and sickle cell disease―fraught with ethnic and racial meanings for many Americans―became objects of biological fascination and crucibles of social debate.
Dying in a City of Blues: Sickle Cell Anemia and the Politics of Race and Health (2001)
Author: Keith Wailoo
This groundbreaking book chronicles the history of sickle cell anemia in the United States, tracing its transformation from an “invisible” malady to a powerful, yet contested, cultural symbol of African American pain and suffering.
American Society of Hematology (ASH) Pocket Guides for Sickle Cell Disease
Three downloadable pocket guides presented by ASH in 2014, adapted from the National Heart, Lung, and Blood Institute’s Evidence Based Management of Sickle Cell Disease: Expert Panel Report, 2014:
Huffington Post: Sickle Cell in Primetime: How a Character Reveal on Shonda Rhime’s Grey’s Anatomy Renewed My Hope
It could be impossible to know when Sickle Cell Disease (SCD), prior to this fall, was last mentioned on primetime television and wasn’t used as an insult or the butt of a joke. Read the full article at the Huffington Post
Nature: Sickle-Cell Anemia: A Look at Global Haplotype Distribution
Can we predict that natural selection will weed out genetic disease over time? Sickle-cell trait haplotype distribution shows the genetic advantages of this mutation.
Read more at Nature.com
Congress: H.R.1807 – Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2015
This bill amends the Public Health Service Act to require the Department of Health and Human Services to make grants to states to: (1) collect data on the prevalence and distribution of sickle cell disease, (2) conduct sickle cell disease public health initiatives to improve access to care and health outcomes, and (3) identify and evaluate strategies for prevention and treatment of sickle cell disease complications. Read more at Congress.gov
The Washington Post: Sickle cell disease once meant a short and painful life, but now there’s growing hope
New research and better and more aggressive treatment have begun to change sickle cell disease from an inherited condition that often condemned children to painful and short lives into a condition that can be managed with less pain and has a better life expectancy. Read the full article at the Washington Post.
Teaching About Genetics and Sickle Cell Disease in Fifth Grade
A 5-lesson, 5th-grade instructional unit, “Genetics and Sickle Cell Disease,” was developed and tested as part of a 40-lesson curriculum. These results showthat genetics and sickle cell disease can be taught successfully in 5th grade, although they are not typically covered at this level.
Science Daily: Cure for sickle cell in adults validated
Physicians have cured 12 adult patients of sickle cell disease using a unique procedure for stem cell transplantation from healthy, tissue-matched siblings. The new technique eliminates the need for chemotherapy to prepare the patient to receive the transplanted cells and offers the prospect of cure for tens of thousands of adults suffering from sickle cell disease.
Sickle Cell Natural Healing: A Mother’s Journey
Author: Tamika Moseley
After spending every three months of her newborn’s life in the hospital managing his sickle cell disease, Tamika Moseley knew she had to change what she was doing or the hospital would be her second home. In this deeply personal book, Tamika shares her story of the difficult journey she took to find natural ways to treat her son’s debilitating disease.
My Brother Has Sickle Cell
Author: Erica Gamble
From mom, professor, author and life coach Dr. Erica Gamble – a heartwarming story about a boy who happens to have sickle cell, based on her son, who has the disease.
What is Sickle Cell Disease and Trait?
Sickle Cell disease is a group of inherited red blood cell disorders. It is the most common genetic disease in the US. About 100,000 Americans have sickle cell disease.
This article includes a link to a handout for printing and distribution.
What are the complications of Sickle Cell Disease?
What are the possible complications of sickle cell disease, and what can be done to help these complications?
About Sickle Cell Disease
A list of frequently asked questions concerning basic information about sickle cell disease. Includes a printable fact sheet.
Stepping Up to Adult Care
This guide will assist programs in developing and establishing a transition program from pediatric to adult care for youth with chronic medical conditions.
Camps for Children with Sickle Cell
Camps are listed by state and age group.
Sickle Cell in Brazil
Sickle Cell in Brazil – Powerpoint
Introduction to Sickle Cell
Normal Blood Cells
About Sickle Cells
Healthy Living
Research
