Available Scholarships for Student Caregivers
List of Available Scholarships for Student Caregivers | The Caring.com Scholarship | Caring.com is a leading online destination for caregivers seeking information and support as they care for aging parents, spouses, and other loved ones. We offer thousands of original articles, helpful tools, advice from more than 50 leading experts, a community of caregivers, and a comprehensive directory of caregiving services.
Educational Coloring Book for Children: The Bear Necessities of Sickle Cell
Coloring is a popular pastime that both children and adults enjoy. It has recently become more popular for adults because of the calming effect of the activity. Over the years, I have observed both parents and children coloring popular cartoon characters in our inpatient and outpatient waiting areas. I developed a coloring book that could […]
Qualifying for Social Security Disability with Sickle Cell Disease
Download this page in PDF format: Qualifying for Medical Benefits If you or your child has sickle cell anemia, you may be eligible for financial assistance. The Social Security Administration (SSA) offers aid to people and adults of all ages who are unable to work or participate in typical childhood activities. Sickle cell disease is listed […]
Financial Aid Guides for Women from OEDB.org
The American Association for University Women recently reported that 53% of women have high student loan debt just one year after graduation, compared to 39% of men. Many women also face the added difficulties of trying to go to college for the first time later in life, returning to school after long gaps of time, and attaining a degree while being a single parent.
To help make college more accessible for them, college planning experts at OEDB.org developed two holistic financial aid guides specifically for women. This site breaks down available grants, scholarships, and fellowships, along with useful tips and tricks.
The Best Scholarship Search Platforms of 2017
Every year there are a wide range of scholarships awarded to students to help finance their education. With over a million different scholarships available, for many students finding all the available scholarships can be a real challenge. So Reviews spent over 40 hours researching 17 of the most popular scholarship search platforms. They analyzed and graded them using five core metrics, including functionality, scholarship availability, quality, application tools, and additional helpful resources. You can find the resource here: http://www.reviews.com/best-scholarship-search-platforms/.
World Sickle Cell Day 2016 Photo Gallery
Courtesy of Fédération Française des Associations de Malades Drepanocytaires et Thalassemiques Website: www.sosglobi.fr Instagram: @fmdtsosglobi Courtesy of Sickle Life Website: www.sicklelife.org Instagram: @sickle_life Courtesy of Sickle Cell Ireland Website: www.sicklecellsocietyireland.org Instagram: @sicklecellireland
Understanding the Impact of Sickle Cell Disease
This infographic for sickle cell awareness was produced by the new Sickle Cell Disease Coalition, formed by American Society of Hematology.
Mobile Apps for Sickle Cell Patients
Sickle Cell Services By Bedford, Louis & Ellicott, LLC The Sickle Cell Disease Association of America, Inc. (SCDAA) has released The Sickle Cell Services Mobile App. It provides members of the SCD community access to a database of medical and support services, national news, live message feed from SCDAA and also incorporates a messaging […]
FDA Campaign for Clinical Trial Diversity
FDA is releasing six public service announcements, a blog, and an infographic to encourage people of diverse races and ethnicities to participate in clinical trials.
You can be a #ClinicalTrialsChampion by sharing these resources far and wide! Spread the word: a person’s race or ethnicity can affect how his or her body responds to medicine.
Addiction Guide
Addiction Guide was created to provide the most comprehensive up-to-date information about various addictions and how to overcome them. We are not a treatment center, but through our network of centers and connections across the country we can provide outlets for people seeking help. We are a diverse team of recovering addicts, healthcare professionals, and patient advocates who can provide you with tools and advice to help you regain control of your life. By increasing awareness and including this resource on your page, millions of Americans across the globe will have the best opportunity to find the right treatment for them and improve their quality of life.
Our mission at Addiction Guide is to serve you. By spreading awareness, more and more people can become educated about their treatment options. We understand that there is no perfect formula for recovery. Everyone’s journey is different but we firmly believe that with the right help, a personalized recovery plan can be created for everyone. Visit www.addictionguide.com to learn more.
What to Know About Low THC (Cannabis) Oil Use in Georgia
In April 2015, Georgia Gov. Nathan Deal signed into law the Haleigh’s Hope Act. This law legalizes the medical use of low-THC oil (cannabidiol or cannabis oil) for alternative treatment of certain approved medical conditions in children and adults, including sickle cell. For sickle cell patients, the diagnosis must be severe or end stage, as determined by the physician.
Visit the Children’s Healthcare of Atlanta (http://www.choa.org/Patients-Families/During-Visit/Childrens-Hospital-Patient-Safety/Medicine-Safety/Low-THC-Cannabis-Oil) and/or the Georgia Department of Public Health (http://dph.georgia.gov/low-thc-oil-registry) websites to learn more about low THC oil.
CHECK – Medicaid Care Coordination for Families with Sickle Cell
CHECK’s mission is to improve the coordination of health care for children and young adults with chronic conditions by engaging and collaborating with them, their families, and their communities to provide tailored disease specific programs and to reduce their barriers to accessing medical, behavioral, and social services. CHECK provides modules on youth and parent sickle cell education. CHECK was developed for the Centers for Medicare and Medicaid Innovations CHECK project, copyright University of Illinois Board of Trustees. Read more…
Parent’s Guide to Cord Blood Foundation
Cord blood treats over 80 diseases including leukemia and lymphoma. Donations are painless and are being used to save the lives of children and adults around the world. To learn more and download a free guide, click here.
FDA Be Safe Online Prescription Campaign
Before you consider purchasing prescription medicines from an online pharmacy, especially one that’s not associated with a health insurance plan or local “brick and mortar” pharmacy, check out FDA’s BeSafeRx – Know Your Online Pharmacy website and resources.
MedlinePlus en Español
La anemia falciforme es una enfermedad en la que su cuerpo produce glóbulos rojos con forma anormal. Las células tienen forma semilunar o de una hoz. Estas células no duran tanto como las normales, los glóbulos rojos redondos. Esto causa la aparición de anemia. Las células falciformes también se atascan en los vasos sanguíneos y bloquean el flujo. Eso puede provocar dolor y lesionar los órganos.
Newborn Screening FAQ
By JoAnn Beasley, RN, BS
State of Georgia Sickle Cell Newborn Coordinator, Clinical Manager of Georgia Comprehensive Newborn Screening Program
Sickle Cell Disease Information for Parents
Usually, red blood cells (RBCs) are shaped like round discs. People who have sickle cell disease, though, have RBCs that are shaped like sickles, or crescent moons. This defect can cause painful episodes, serious infections, chronic anemia, and damage to body organs.
Read more at KidsHealth
What Is Sickle Cell Disease? Information for Teens
Sickle cell disease is a blood disorder that’s inherited — meaning it’s passed down from parents to their children. Babies are born with sickle cell disease when they inherit two abnormal genes (one from each parent). These genes cause the body’s red blood cells to change shape.
Read more at KidsHealth
Robbie the Red Blood Cell – A Buyable Coloring Book for Children
Purchase online here
Do You Know About Sickle Cell Anemia? Information for Kids
Have you ever seen a sickle? It’s a farm tool with a curved, sharp edge for cutting wheat. Sickle cell anemia (say: uh-NEE-mee-uh) is a disease of the blood. It gets its name because a person’s red blood cells are shaped like sickles, or crescent moons, instead of their usual round, disc shape.
Read more at KidsHealth
The National Newborn Screening & Global Resource Center
The National Newborn Screening and Global Resource Center (NNSGRC) serves as an independent U.S. national resource center for newborn screening and provides newborn screening information globally. It serves as the only non-federally funded comprehensive source of newborn screening information.
Sickle Cell Anemia Information Portal from the Mayo Clinic
Sickle cell anemia is an inherited form of anemia — a condition in which there aren’t enough healthy red blood cells to carry adequate oxygen throughout your body.
Normally, your red blood cells are flexible and round, moving easily through your blood vessels. In sickle cell anemia, the red blood cells become rigid and sticky and are shaped like sickles or crescent moons. These irregularly shaped cells can get stuck in small blood vessels, which can slow or block blood flow and oxygen to parts of the body.
Read more at the Mayo Clinic
Sickle Cell Anemia Information Portal on MedlinePlus
Sickle cell anemia is a disease in which your body produces abnormally shaped red blood cells. The cells are shaped like a crescent or sickle. They don’t last as long as normal, round red blood cells. This leads to anemia. The sickle cells also get stuck in blood vessels, blocking blood flow. This can cause pain and organ damage.
Read more at MedlinePlus
About the Americans with Disabilities Act
Too often in the past, people with sickle cell disease were denied jobs or fair treatment at work solely because they had sickle cell disease. Now, the Americans With Disabilities Act of 1990 puts the strong arm of the law on the side of fairness. It protects many people with sickle cell disease from job […]
Find out what Clinical Trials for Sickle Cell are Taking Place Around the World!
A searchable map offered by ClinicalTrials.gov
Sickle Cell Natural Healing: A Mother’s Journey
Author: Tamika Moseley
After spending every three months of her newborn’s life in the hospital managing his sickle cell disease, Tamika Moseley knew she had to change what she was doing or the hospital would be her second home. In this deeply personal book, Tamika shares her story of the difficult journey she took to find natural ways to treat her son’s debilitating disease.
My Brother Has Sickle Cell
Author: Erica Gamble
From mom, professor, author and life coach Dr. Erica Gamble – a heartwarming story about a boy who happens to have sickle cell, based on her son, who has the disease.
What is Sickle Cell Disease and Trait?
Sickle Cell disease is a group of inherited red blood cell disorders. It is the most common genetic disease in the US. About 100,000 Americans have sickle cell disease.
This article includes a link to a handout for printing and distribution.
What are the complications of Sickle Cell Disease?
What are the possible complications of sickle cell disease, and what can be done to help these complications?
About Sickle Cell Disease
A list of frequently asked questions concerning basic information about sickle cell disease. Includes a printable fact sheet.