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Understanding the Impact of Sickle Cell Disease

By Erin Hecht On September 24, 2016 · Add Comment · In Healthcare Providers, Healthcare Providers - Medical Resources and Information, Patients and Families - Medical Information
This infographic for sickle cell awareness was produced by the new Sickle Cell Disease Coalition, formed by American Society of Hematology.
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FDA Campaign for Clinical Trial Diversity

By calovel On June 20, 2016 · Add Comment · In Healthcare Providers - Medical Resources and Information, Patients and Families - Medical Information
FDA is releasing six public service announcements, a blog, and an infographic to encourage people of diverse races and ethnicities to participate in clinical trials. You can be a #ClinicalTrialsChampion by sharing these resources far and wide! Spread the word: a person’s race or ethnicity can affect how his or her body responds to medicine.
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Duke University Emergency Video Series

By calovel On February 16, 2016 · Add Comment · In Healthcare Providers - Medical Resources and Information
Duke University has created a series of videos to help emergency healthcare staff approach various complication facing sickle cell patients.
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Johns Hopkins University: Vision of Hope-Integration of Palliative Care in Chronic Pediatric Disease

By calovel On February 16, 2016 · Add Comment · In Healthcare Providers - Medical Resources and Information
The Vision of Hope curriculum was motivated by a commitment to integrate the principles of pediatric palliative care to sickle cell disease and duchenne muscular dystrophy. Pediatric Palliative Care seeks to provide evidence-based curricular materials to institutions. It incorporates emotional, spiritual, developmental, and physical dimensions creating a holistic approach to care. The Johns Hopkins Berman Institute has created 11 modules to help guide healthcare providers on this approach. Scroll down on the linked page and click the sickle cell link to view the different resources. Click here to visit the site:  http://www.bioethicsinstitute.org/research/projects-2/hope
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Treatment and Prevention

By calovel On January 1, 2016 · Add Comment · In Healthcare Providers - Medical Resources and Information
A thankful teenager, Keon Penn of Atlanta celebrates his 14th birthday after being declared "cured" from sickle cell disease. Two years ago Keon underwent the world’s first unrelated stem-cell transplant at Egelston Children’s Hospital in Atlanta on December 11, 1998.  Read more...
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Sickle Cell Anaemia and Malaria

By calovel On January 1, 2016 · Add Comment · In Healthcare Providers - Medical Resources and Information
Luzzatto, L (2012). Mediterr J Hematol Infect Dis. 2012; 4(1): e2012065.  Read more on PubMed
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American Society of Hematology (ASH) Pocket Guides for Sickle Cell Disease

By calovel On November 25, 2015 · Add Comment · In Healthcare Providers - Medical Resources and Information, Uncategorized
Three downloadable pocket guides presented by ASH in 2014, adapted from the National Heart, Lung, and Blood Institute's Evidence Based Management of Sickle Cell Disease: Expert Panel Report, 2014:
  • Management of Acute Complications of Sickle Cell Disease
  • Health Maintenance and Management of Chronic Complications of Sickle Cell Disease
  • Hydroxyurea and Transfusion Therapy for the Treatment of Sickle Cell Disease
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NIH Evidence Report: Evidence-Based Management of Sickle Cell Disease

By calovel On September 30, 2015 · Add Comment · In Healthcare Providers, Healthcare Providers - Featured Resources, Healthcare Providers - Medical Resources and Information
The purpose of the “Evidence-Based Management of Sickle Cell Disease:  Expert Panel Report (EPR), 2014” is to synthesize the available scientific evidence on sickle cell disease and offer guidance to busy primary care clinicians.  Download the full report or individual chapters.
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Template for Patient & Family Needs Assessment

By calovel On July 28, 2015 · Add Comment · In Healthcare Providers, Healthcare Providers - Medical Resources and Information, Patients & Families, Patients and Families - Medical Information
This form is designed to help facilitate understanding of the family's circumstances, knowledge of sickle cell disease, and satisfaction with health care and to identify patient and family concerns and potential barriers to appropriate treatment. It should be completed by the family when the child is not ill (e.g. in the waiting room prior to a clinic visit) and subsequently reviewed with the family by a health care provider.
Read More »
 
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This site is designed to support, not replace, the patient-physician relationship. Patients should always check with their doctors before making any changes in their medication or treatment.


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About this Site

This site is a collaboration between members of the Emory Center for Digital Scholarship, the Aflac Cancer and Blood Disorders Center of Children's Healthcare of Atlanta, the Emory School of Medicine, and the Comprehensive Sickle Cell Center at Grady Health System, Atlanta, Georgia. The Editorial Board of the Sickle Cell Information Center manages content of the site, but is not responsible for any inaccuracies in content or links provided. In no way will the participating entities, the Editorial Board, our contributors, or any participants be held responsible for any problems that might occur, or any damage or loss sustained due to the use of information (or inadequate or incomplete information) that may be contained on the site.

 

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